Aussie doctors unable to repair boy with heart disease
HOW would you tell your little boy he can't run and play like the others?
That is a reality for Sue-Anne Druery every day.
Her nine-year-old boy Sean has a rare form of the heart disease - hypertrophic cardiomyopathy - which causes his heart muscle to become thickened.
To prevent Sean from having a heart attack, he will have surgery tomorrow to implant a cardioverter defibrillator.
The Currimundi boy, who also has Asperger's syndrome, knows this surgery will not actually fix him so he still can be like the other kids.
"Australian doctors can't do a myectomy (surgery that could fix his condition) on Sean as his left and right ventricles are too thick to remove the muscle and if they do they are worried his heart won't restart," Ms Druery said.
"The only other option in Australia is to have a transplant which they won't put Sean on a list for until he shows signs that his heart is going in to heart failure."
For the surgery, the family needs to be by Sean's side but the Mater Children's Hospital is able to accommodate only one parent.
Ms Druery said she and her partner needed to both go with their three other children, two of whom are on the autism spectrum.
They are putting out a call for help as the last resort to help fund the cost of accommodation for their young family to be by Sean's side.
For weeks they have been trying to fund their accommodation including holding two garage sales but have not reached the funds they need.
"When we get back we are going to be broke," Ms Druery said.
"It has got to the point where we knew finan-cially we are struggling to pay for the accommodation.
"We didn't want to ask people for help.
"We tried Ronald McDonald House but we couldn't get in there."
The family has found a room at the Mater Hill Place but will have to bear all the costs.
Can you help?
The Druerys need $1000 to support their boy while he recovers from heart surgery.
Visit www.gofund me.com/9hr5zo to support their cause