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Life wish granted: funding for urgent surgery for Angus

AFTER more than a year of filling out application forms and waiting for replies, the Bowles family has received a welcome response.   

The family has been told a government grant for Angus and one parent to fly to Texas has been approved, meaning Angus should be able to undergo non-invasive laser treatment that can only be performed in the USA, to shrink brain tumour.

Angus has the rare Pallister-Hall Syndrome, which means he requires surgery that can only be performed in Arizona or Texas in the US.  

The Bowles family has been applying for funding since the end of 2013, in order for Angus to receive the treatment he requires.  

Angus' mother, Sonya, said there was still much of the process to complete, but the news was a welcome step forward.  

"It's a relief," Mrs Bowles said.  

"It's awesome - it's really good to get the approval for the grant."   

While the approval of the grant is a step forward, Mrs Bowles said she did not know when Angus might be able to receive his treatment.  

"I have made contact with the hospital in Texas (the Texas Children's Hospital) and I am currently waiting to hear back from them in terms of dates," she said.  

"The grant is only valid for six months so it needs to be done by June or we will need to re-apply - which was a long process and something we don't want to go through again.  

"It may be the case that they cannot do the surgery before the end of June but we'll just have to see.   "There is not much more we can do at the moment."  

While the grant is welcome news, the family will need to pay for Angus' father, Phil, to also fly to the United States.  

"The grant covers Angus and I to go, but we'll have to pay for Phil to go as well," Mrs Bowles said.  

Since finding out last year that Angus would likely receive his treatment in Texas, Mrs Bowles said she had been able to converse with other families who had children undergo similar treatment.  

"Although the results differ, they have generally been quite good," she said.  

"Most people speak highly of the end results.   "But it's a case-by-case basis - some kids just have the tumour.  

"I don't think Angus will ever be seizure- and medication-free but if we can get to a situation where the seizures and medication are a lot less frequent, that would be good.  

"Angus' condition is stable - he's not any worse but he's not any better."  

In the meantime, while they wait to hear of a possible date for surgery, the family will continue plugging away as they have since they moved to Maryvale in 2012.  

"It's good that we've got the grant but we're just taking it one day at a time," Mrs Bowles said.  

Topics:  angus bowles brain tumor warwick


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